Duchenne Care Congres

Duchenne Care Conference

September 7, 2018


OBA, the Amsterdam Public Library


Oosterdokskade 143,  1011 DL Amsterdam, next to the CS Amsterdam



Early 2018 an update on the International Care Considerations was published in the Lancet (Neurology)*. During the Duchenne Care Conference the most relevant topics of these updated Care Considerations will be presented followed by discussions on the implementation of the Standards of Care.


Programme will be posted soon on this website. Among the confirmed speakers are:

prof Eugenio Mercuri, pediatric neurology (Rome, IT)

dr Jarod Wong, endocrinology (Glasgow, UK)

prof Jonathan Finder, pulmonology (Pittsburgh, US)

dr Imelda de Groot, rehabilitation (Nijmegen, NL)

dr Jos Hendriksen, neuropsychology (Heeze/Maastricht, NL)

dr Erik Niks, pediatric neurology  (Leiden, NL)

dr Linda Cripe, pediatric cardiology (Colombus, US)

dr Anne Connolly, pediatric neurology (St Louis, US) tbc

Marleen van den Hauwe, psychical therapy (Leuven, BE)


Clinicians and other health care professionals


Will open at May 16, 2018 on this website

Registration Fee:

Clinicians: € 95,-

Other health care professionals: € 45,-

Information on accreditation will be available soon.

Diagnosis and management of Duchenne muscular dystrophy


There are many hotels in the area. Just to mention a few:
Ibis Styles Amsterdam Central Station
Motel One Amsterdam Waterlooplein
DoubleTree by Hilton Amsterdam Centraal Station
Grand Hotel Amrâth Amsterdam
Lloyd Hotel Amsterdam

For more information: info@duchenne.nl

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