Duchenne Care Congres

Duchenne Care Conference


September 7, 2018


Join the livestream of the conference:  Youtube Duchenne Parent Project .

Questions to the speakers can be asked through Twitter #DuchenneCareConf

Presentations will be posted online after the conference.


OBA, the Amsterdam Public Library


Oosterdokskade 143,  1011 DL Amsterdam, next to the CS Amsterdam


9:00-18:00h CEST

Early 2018 an update on the International Care Considerations was published in the Lancet (Neurology)*. During the Duchenne Care Conference the most relevant topics of these updated Care Considerations will be presented followed by discussions on the implementation of the Standards of Care.


International speakers include:

prof Eugenio Mercuri, pediatric neurology (Rome, IT)

dr Jarod Wong, endocrinology (Glasgow, UK)

prof Jonathan Finder, pulmonology (Pittsburgh, US)

dr Linda Cripe, pediatric cardiology (Colombus, US)

dr Anne Connolly, pediatric neurology (St Louis, US)

Marleen van den Hauwe, physical therapy (Leuven, BE)

For the full programme click here.


Clinicians and other health care professionals

Registration Fee:

Clinicians: € 95,-

Other health care professionals: € 45,-


Accreditation is requested for Neurology, rehabilitation, pediatrics and physical therapy.

Diagnosis and management of Duchenne muscular dystrophy


There are many hotels in the area. Just to mention a few:
Ibis Styles Amsterdam Central Station
Motel One Amsterdam Waterlooplein
DoubleTree by Hilton Amsterdam Centraal Station
Grand Hotel Amrâth Amsterdam
Lloyd Hotel Amsterdam

For more information: info@duchenne.nl

The closing date for registration is extended until September 3, 2018.


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